GNAO1 is a newly identified condition, so new, that there’s no name. It’s known simply by the name of the mutated gene – GNAO1. This disorder can cause individuals to suffer from seizures associated with early infantile epileptic encephalopathy-17, others have mild to severe movement disorders.
Due to COVID-19 we have no future fundrasing events planned at this time.
https://www.leicestermercury.co.uk/news/health/our-sons-condition-rare-took-3046135
https://www.pressreader.com/uk/loughborough-echo/20191225/281891595184583
We are connected to international foundations and are pleased to share our commitment to attending the first and second european GNAO1 conferences arranged by the Italiian foundation; https://www.gnao1.it/en/what-is-gnao1
We have sent funds over to the American Foundation to contribute to their research; https://gnao1.org/
And conitue to build relationships with other GNAO1 foundations across the globe.
Spain https://gnao1.es
Finland http://www.gnao1.fi/
Netherlands https://gnao1.nl/