GNAO1 is a newly identified condition, so new, that there’s no name. It’s known simply by the name of the mutated gene – GNAO1. This disorder can cause individuals to suffer from seizures associated with early infantile epileptic encephalopathy-17, others have mild to severe movement disorders.
Due to COVID-19 we have no future fundrasing events planned at this time.
We are connected to international foundations and are pleased to share our commitment to attending the first and second european GNAO1 conferences arranged by the Italiian foundation; https://www.gnao1.it/en/what-is-gnao1
We have sent funds over to the American Foundation to contribute to their research; https://gnao1.org/
And conitue to build relationships with other GNAO1 foundations across the globe.